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I have Spinal Muscular Atrophy (SMA) type 2, which is a disease which robs people of their physical strength by affecting the motor nerve cells in the spinal cord and weakening my muscles. In the spinal cord there is a gene that produces a type of protein, that protein is needed for the healthy development of motor neurons but I am missing this gene,. This mean means i can't do certain things like swim on my own, walk, crawl, stand and eat. I also have a gastronomy in place to eat through as i have a weak and dangerous swallow. Along with my main diagnosis I also have Scoliosis, a curvature of my spine caused by my weakened muscles.
 
Equipment I use 
 
Suction
I use suction as I sometimes struggle to swallow my secretions. 
Bipap
To help me with my breathing when im tired and i wear it every night to keep my SAT's levels normal. 
Cough Assist
Helps me to clear my chest if i feel chesty i use it every morning, night after my NEB's and whenever i need to use it in the day i could use it from 0-... a day it depends on my chest. 
Wheelchairs
I have 3, 1 powerchair for home, 1powerchair for school and a manel just in case my power chairs break.
Hoists 
I use to help my family to move and transfer me.
Food Pump 
Pumps milk into my stomach at meal times as i don't eat orally. 
Neb's 
I have Neb's every morning and night to help clear secretions of of my chest ready for the day ahead of me.
 
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